Australian Spina Bifida and Hydrocephalus Association - National organization acting as the peak body for information and support. Provides opportunity to email questions to an expert, fact sheets and contact information.
Hydrocephalus Association - Non-profit support and advocacy group information on resources and education for families and individuals.
The Hydrocephalus Foundation, Inc. - Non-profit support organization provides information and resources for patients and families affected by hydrocephalus. Saugus, MA
National Hydrocephalus Foundation, Inc. - NHF goals are to facilitate a network for those affected by hydrocephalus, increase public awareness, and give moral support. Along with advocating research for the cause and prevention of this disorder.
